“The Best (Unwanted) Advice from the NICU”: my post on PreemieBabies101

We had been in the NICU for just a couple of weeks when a nurse stopped me in the bay just outside my son’s bed.

“I’m Chris. I’m the charge nurse.” she said. I don’t remember my response. It was probably as polite as I could muster, but considering the circumstances, certainly not overly friendly. Shortly into the conversation she disclosed that she had a fourteen-year-old son with Down syndrome. It was at that point in our conversation I let my guard down and allowed the tears I had been holding back to leak out. And she grabbed my hand and said, “It’s all in his time. Always in his time.”

It wasn’t the advice I wanted to hear because my most pressing issue at that point was that my son wasn’t eating by mouth. He was in fact aspirating and showing no signs of being able to eat anytime soon. His time was not my time. We were only two weeks in and already getting pressure to start considering going home on a feeding tube. On top of that we were dealing what we later learned were the beginning stages of him going septic. He was very sick. Absolutely nothing was happening on my time and I doubted whether or not we would ever be able to take him outside of the walls of the hospital.

But the way Chris looked into my eyes that day, I sensed that she was giving me an important message that I needed to file away. I needed to remember what she told me.

It’s all in his time.  Always in his time.

To read the rest of my post visit PreemieBabies101. This is one of my favorites. It is such a good reminder to me to allow Nathan to live his life in his own way, in his own time.

My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!

Also be sure to check out my list of Favorite Books on Disability!

#therapy #Thinkery #tubefeeding

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