N’s surgery got bumped up to 11:30 tomorrow morning.
I’ve been scurrying around ever since I got the phone call this morning. My organized self transformed into a frantic mom trying to wrangle two kids out the door and head straight to a pre-operative appointment.
When I exited 51st street (yes my car could drive there without me behind the wheel), I pulled up behind the Newborn Critical Care Unit and followed it all the way to campus. I lost it. The baby in my back seat was in that ambulance eight short months ago. All the feelings came rushing back.
So with my PTSD in full swing we checked into the Day Surgery Department just in time for our appointment. N did great. Did you know there is a magic numbing cream for blood draws? Where was that all our NICU stay long?
M also did great. Let me just say that all of the volunteer organizations and nurses do such a good job of caring for siblings too. At registration M got a Marvel Comics coloring book to which his response was, “Wow!” with a big jump. He also got two toys for him and two toys for N from the Assistance League of Austin. Then another nurse in the pre-op area took him to get a rainbow popsicle and apple juice. I did take notice of the sugar but figured the crash would happen once we were safety back in the car. It did. He colored all over his face and hands and car door with a pen I didn’t know he had. Apparently I had my mind on other things.
So we need to do another one of those special soap and medicine baths tonight, fast starting at 4:00 am, and report back to Surgery at 10:00 am tomorrow.
Thank you for all your love, prayers, and support. So many of you have offered to help but honestly I don’t know what we need yet. Depending on how well N does, maybe visitors? I will try to update on this blog and on Facebook. If I don’t respond to your text or voicemails, know that I still very much appreciate them.
“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us.” -Ephesians 3: 20 “You will keep in perfect peace those whose minds are steadfast, because they trust in you.” -Isaiah 26: 3 “Let us hold unswervingly to the hope we profess, for he who promised is faithful.” -Hebrews 10: 23
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!