I haven’t had much to say this week. The main thing rolling around in my head is a plea, “Lord, keep this baby comfortable and pain free! Help us know how to care for him.” It’s really awful to watch and if you’ve witnessed it you know what I’m talking about. It’s getting progressively worse. So we are just counting the days till Monday for the final test and the Monday after that when he is scheduled for the OR again. my husband keeps telling me he thinks things are moving exceptionally fast considering how he was able to get us in the Aerodigestive clinic right away. I am thankful for that. Still it makes me feel completely helpless as his mother. And so I do the only thing I know – pray. The same thing over and over again.
Look at this sweet boy. He’s so, so good at comforting himself by bringing his hands and fingers to his mouth. He’s also started ringing his hands when it’s really bad. Surely, this is not all in vain. It cannot be. Cannot.
“Indeed, my plans are not like your plans, and my deeds are not like your deeds, for just as the sky is higher than the earth, so my deeds are superior to your deeds and my plans superior to your plans.” – Isiaiah 55:8-9
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
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