The night my son Nathan was born he made a sour face.
The labor and delivery nurse said to me, “That’s a face only a mother can love.”
I was too drugged post-surgery to process what she said, let alone respond with something I would’ve said to my then three-year-old like, “That’s not very nice!”
Almost four years later her words still sting when I think about them, especially because we were in the midst of discovering our little boy was born with birth defects. Nathan has abnormalities affecting his brain, spine, heart, and kidneys. He was later diagnosed with Cri du chat syndrome, a rare (1 in 50,000 births) chromosomal disorder.
His presence is a gift. It’s not because of what he does or doesn’t do. It’s because of who he is–a very sweet boy buried within a syndrome that entraps his mind and body.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!