“How to Be a Friend to Someone Who Has a Disability.” It was an amazing experience for him, and for me. I am incredibly grateful for the opportunity we both had to learn from his well-informed teacher about people, who like his brother, have special needs.
During that unit I sat him down over ice cream and interviewed him about his brother. He was in the thick of learning about physical, hearing, visual, intellectual and emotional challenges. He knew the lingo and we were talking about things regularly. We talked about things when he noticed someone who had a disability at HEB and we talked about special differences of Nathan. It was an ongoing conversation for us. So I took his many answers and insights and wrote a little book, just for him. It’s called: My Special Brother: What It’s Like to Have a Special Needs Brother.
My original idea was to give this book to him when he finished kindergarten last year. I didn’t meet my deadline. Shutterfly was running a special promotion and I threw this together pretty quickly. I am a big Shutterfly fan! If you are a perfectionist like I am and want to get it just right, check out Shutterfly for books, cards, gifts. They make it easy to make an excellent and very personalized product.
My favorite quote from My Special Brother:
It’s a special syndrome because it tells people about God. That’s why it’s called special needs. It’s Cri du chat syndrome.”
I was waiting for the right moment to give this book to Mac. We were talking the other day about the book I wrote and I said, “You know you wrote a book too.” He was so excited to see this book about him and brother. It was good to reminisce. My prayer is that as he becomes more swayed and distracted by the things of this world, he hides these lessons away in his heart.
Store your treasures in heaven, where moths and rust cannot destroy, and thieves do not break in and steal. Wherever your treasure is, there the desires of your heart will also be.” – Mac 6: 20-21
This lesson is certainly not behind us. Next year we look forward to learning about disabilities at our neighborhood school.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!