Long Day

It was a long day for obvious reasons. Surgeon said everything went great. N is telling us in his own way however, that things did not go so great.

Pain management has been a challenge. When we medicate him too much, then his oxygen stats drop too low. He’s on oxygen when he tolerates the mask, which is not often. A PICU nurse came down to asses him but I think we’re staying put for now. I’d just like to avoid the whole respiratory team rushing in thing like last time.

Please pray for sleep and pain management.

Hope to report that he’s feeling better tomorrow.

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