I remember diagnosis day like it was yesterday. I remember anxiously sitting in a sterile NICU conference room listening to a geneticist tell me, “He may never walk, talk, or be able to live independently.” She went on to say that I would probably need a home health nurse to take a shower, curl my hair, and paint my nails.
My first thought was, I rarely curl my hair or paint my nails.
And then all at once: I will have an adult child living with me for the rest of my life. What will happen after my husband and I die? We have just burdened his brother with a huge responsibility. And how in the world will we ever afford all this?
It was too much to process. That doctor painted a very bleak picture for what life would be like for our then two-week old son. It was definitely my darkest day. We received a lot of information, but very little hope.
I wish I had known then what I know now.
Today, I have the honor of sharing my “then and now” of our story over at ellenstumbo.com. Ellen was one of the first bloggers I found after Naffer was born who had something real and really helpful to say about disability. Please go here to read the rest my guest post!
I wish I had known then, how God would transform a heart of despair into a heart of hope.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!