“I Wish I Had Known” : my guest post on ellenstumbo.com

I remember diagnosis day like it was yesterday. I remember anxiously sitting in a sterile NICU conference room listening to a geneticist tell me, “He may never walk, talk, or be able to live independently.” She went on to say that I would probably need a home health nurse to take a shower, curl my hair, and paint my nails.

My first thought was, I rarely curl my hair or paint my nails.

And then all at once: I will have an adult child living with me for the rest of my life. What will happen after my husband and I die? We have just burdened his brother with a huge responsibility. And how in the world will we ever afford all this?

It was too much to process. That doctor painted a very bleak picture for what life would be like for our then two-week old son. It was definitely my darkest day. We received a lot of information, but very little hope.

I wish I had known then what I know now.

Today, I have the honor of sharing my “then and now” of our story over at ellenstumbo.com. Ellen was one of the first bloggers I found after Naffer was born who had something real and really helpful to say about disability. Please go here to read the rest my guest post!

If you’re visiting from ellenstumbo.com, you can learn more about our story here.


I wish I had known then, how God would transform a heart of despair into a heart of hope.

My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!

Also be sure to check out my list of Favorite Books on Disability!


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