I was interviewed for an article in the most recent edition of Community Impact on my experience with Hand to Hold. Hand to Hold a support organization for parents of preemies and NICU babies. I spoke of my experience of having a peer mentor through H2H immediately following N’s diagnosis.
There are things I said that didn’t make it into the paper. Primarily what a support it’s been to have a bunch of former NICU moms share their experiences on Facebook and PreemieBabies101.com. I’ve spoken with moms I’ve never met in person on their experiences with different doctors and procedures and how to do this whole medically fragile baby thing. It doesn’t necessarily stop when you exit the NICU for the last time. Unfortunately I can say that a year later, but I’m so grateful for the support. I sincerely hope to support those who follow behind.
Hand to Hold, a 501c3 nonprofit organization, provides comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications. For more information, visit www.handtohold.org or call toll-free 855-H2H-NICU.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!