“Gaining a Better Understanding of GERD”: My Post on PreemieBabies101


To read the full article on Gaining a Better Understanding of GERD, visit PreemieBabies101

BUT (with Nathan there’s always a but)…

He’s still experiencing tachycardia and passing out from time-to-time. After doing a thorough work-up on him and not being able to understand the cause of his symptoms, my gut says it’s a benign problem. Or at least a problem unique to Nathan’s body that we may not be able to prevent. It appears that the tachycardia is a symptom of some sort of pain in his body. Where? We do not know. We thought that the pain could be from reflux but after the Nissen surgery this theory doesn’t necessarily hold true. We am trusting that God will reveal to us what we need to know about his body, when we need to do it. In the meantime, we will continue to treat what we do understand.

A big piece of Nathan’s body that we did gain a more full understanding on in 2016 was his bladder/kidney complications, which were an obvious source of pain for him and which we have helped relieve a bit. Since January we have been cathing Nathan every three hours (mostly) so that he can void without pain and in attempt to prevent further kidney damage. We are traveling back to NY before the end of the year for a follow-up appointment with his urologist. We will check his kidney function and assure that we are on track for caring for this organ system. This time Mac is coming along and we are going to make it as fun as we possibly can.

We continue to look for the upsides to our upside-down life and be grateful.

give thanks in all circumstances; for this is God’s will for you in Christ Jesus.” – 1 Thessalonians 5:18

My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!

Also be sure to check out my list of Favorite Books on Disability!

#tubefeeding #feeding #kidneys #reflux #cathing

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