Celebrating Love (and Not Being in the ER)

Nothing says love like taking your toddler to the ER because he passed out and was unresponsive. That is how we spent Valentine’s Day last year. Everyone was such a trooper, especially big brother who had been looking forward to eating the Chicago-style, heart-shaped pizza my in-laws send us every year.

These episodes–as we came to call them–persisted for a year. In spite of lots of testing and even a new specialist we still don’t have any answers as to the cause. I’m beginning to resolve there are lots of things in life that we won’t understand. Each year I’m leaning more into Christ’s peace in the midst of the unknowns, present and future.

Even minor holidays give us something greater to celebrate. This Valentine’s Day we not only express love to our friends and family with cards and candies, but in gratitude for God’s great love for us.

But because of his great love for us, God, who is rich in mercy, made us alive with Christ even when we were dead in transgressions—it is by grace you have been saved.” – Ephesians 2:4-5

We are also incredibly grateful to not be in the ER this February 14th and that Nathan has not had a passing out episode since December. Rather than try to explain that, I’m going to just be grateful while enjoying my heart shaped pizza and chocolate covered strawberries.

Lately I’ve been writing for other sites on topics ranging from organizing to politics. I feel a little scattered right now but it’s an exciting time. I have a big project coming out soon. Stay tuned for that as well as new Nathan updates. He amazes me and teaches me about sacrificial love every day.

My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!

Also be sure to check out my list of Favorite Books on Disability!


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